The Hemophilia Foundation of Michigan strives to improve the quality of life for all people affected by hemophilia, von Willebrand disease, other coagulation disorders, and related complications, including HIV/AIDS and hepatitis.
The Hemophilia Foundation of Michigan offers numerous programs to support people living with bleeding and clotting disorders:
- Camping Programs
- Teen Retreat
- Holiday Party
- Bleeder and a Buddy
- Lansing Overnight Lock-in
- Camp Staff Opportunities
- Camp Old Beagle
HFM Highlighted Events
Bleeder and a Buddy
October 28, 2016
Wesleyan Woods Camp, Vasser MI
Bleeder and a Buddy Weekend Retreat is open to teens with bleeding disorders and one of their non-affected friends. The weekend offers the "bleeder" and "buddy" opportunities to share and learn more about bleeding disorders as well as a chance to develop leadership and team-building skills. View Event Details »
Support HFM with your tax-deductible donation.
When a recall or withdrawal is announced, each manufacturer and supplier has their own internal process for notifying pharmacies, clinicians, and patients. However, for patients with bleeding disorders, there is another resource that will alert you directly in the event of a product recall or withdrawal: the Patient Notification System (PNS). HFA believes the PNS is a valuable resource for patients and families with bleeding disorders. | 07.8.2016
Free or Low Cost Dental Program for any person who has a bleeding disorder or who is a symptomatic carrier. Click for more details. | 07.8.2016
Thank you to the National Hemophilia Foundation for making a list of Patient Assistance Programs available to our community! | 04.16.2015
Lansing Day Wednesday, May 6, 2015 Please join us to educate legislators about bleeding disorders. - THIS EVENT IS FREE OF CHARGE - | 02.5.2015
Upon clarification by the manufacturers of Kogenate FS (Bayer) and Helixate FS (CSL Behring), it has come to HFA's attention that ALL of the lot numbers listed below are included in the extension recalls issued on August 10, 2016 and the original recall notice of July 25, 2016. | 08.12.2016
Medical Advisory #421 - Voluntary Recall Extension for Additional Lots of Helixate FS CSL Behring has announced an extension to a voluntary recall of two lots of Helixate FS with vial adapter that was sent to the community in NHF Medical Advisory #420. There was an analysis conducted on additional lots manufactured before November 2015. As a result additional lots are being voluntarily recalled. Declining potency issues were the problem with these lots after routine stability testing. Two lots that fell below the acceptable range were: Helixate FS 2000 IU Lot # 270PWG6 Expiry Date: 05/08/2017 Helixate FS 1000 IU Lot # 270NV9G Expiry Date: 09/23/2016 Additional lots may eventually fall below the pre-specified acceptable range before shelf life expiration and are subject to recall. These lots are listed on the following page of this document. | 08.11.2016
Medical Advisory #419: Voluntary Recall Issued for 2 Lots of Kogenate FS Bayer has announced a voluntary recall of two lots of Kogenate FS with vial adapter. The two lots of 2,000 IUs contain active ingredient manufactured before November 2015. Recent stability testing revealed a loss of potency to below pre-specified acceptable levels. The lot numbers involved are:Lot # 270TN1CLot # 270R978This is not an issue of safety of the product. Any outstanding vials of these two lots will be replaced at no cost. For further information or to arrange for an exchange, please call the Recall Processing Center at 855-838-5782. | 07.25.2016
Medical Advisory #420: Voluntary Recall Issued for 2 Lots of Helixate FS CSL Behring has announced a voluntary recall of two lots of Helixate FS with vial adapter. The two lots of 2,000 IUs contain active ingredient manufactured before November 2015. Recent stability testing revealed a loss of potency to below pre-specified acceptable levels. The lot numbers involved are:Lot # 270TN1GLot # 270R979This is not an issue of safety of the product. Any outstanding vials of these two lots will be replaced at no cost. For further information or to arrange for an exchange, please ccontact the CSL Behring Customer Service at 1-800-683-1288 or email@example.com (link sends e-mail). | 07.25.2016
The Hemophilia Foundation of Michigan supports families who are new to the hemophilia community. Parents have many opportunities throughout the year to meet with other parents and learn more of the basics of raising a child with hemophilia. Programs not only educate new families, but also help them connect to other people and resources in the community. HFM supplies an informative packet filled with programs and events happening state-wide.
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