Covid-19 has brought many changes to our daily lives. As life begins...
Updates on resources and economic support for Michiganders during the COVID-19 pandemic....
State specific information on unemployment benefits and COVID-19 resources ...
NHF shares an update on product availability during the COVID-19 outbreak....
- Cancelled Events
- Featured News
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- Medical Advisory
Covid-19 has brought many changes to our daily lives. As life begins to “open up,” Karen Ridley shares what changes to expect as you visit the dentist.
In light of the growing concern of spread of COVID-19 within Michigan, HFM will be cancelling SpringFest on April 3-5, 2020 at the Amway Grand Hotel in Grand Rapids.
There are many treatment options for patients with hemophilia, with even more being developed in scientific laboratories. Learn about the broad principles of the different treatment options currently (or potentially) available for hemophilia A and B through this story of a few houses.
HFM and Save One Life are partnering to support the unmet needs of women and girls with bleeding disorders across the world.
Last week, Bayer announced the recall of two lots of Kogenate® FS antihemophilic factor (recombinant) 2000 IU vials. That highly concerning announcement has raised many questions on the part of both national organizations and community members.
Shellye Horowitz reviews the birth of HFM’s National Conference for Women with Hemophilia and the movement to ensure women with hemophilia receive proper medical care.
As the 2019 legislative cycle begins, HFM will be monitoring the introduction of bills and assessing their possible impact on the bleeding disorders community
The bill also includes exemptions for disability caretakers, parents of children under six, pregnant women, people receiving disability benefits, and those who are medically frail, which includes patients diagnosed with hemophilia, VWD, and other factor deficiencies.
Children’s Special Health Care Services: Maintaining Access to Care for the Bleeding Disorders Community
CSHCS covers people under the age of 21 with a qualifying medical condition. However, the age limitation is waived for patients with certain blood clotting disorders (hemophilia and other bleeding disorders) and cystic fibrosis.
This legislation would require insurance plans to offer a copay only option, which would not require patients to reach a deductible before their insurance begins to pay a portion of the cost.
A few things to keep in mind! Do you depend on factor co-pay assistance? If so, you should know that some insurance plans have changed …
If you are currently using Monoclate-P®, please contact your physician or hemophilia treatment center to learn about other options that are available to you for treatment.
The Company has suspended dosing in all ongoing fitusiran studies pending further review of the safety event and development of a risk mitigation strategy.