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Looking for Assistance with Internet Access Support?
The Emergency Broadband Benefit Program May Be Able To Help.
Patient Advocates Thank State House Members for Bipartisan Vote Approving Bill to Ensure All Copays Count
On Its Way to the Senate, House Bill 4353 Supports Patient Access to Critical Treatments by Banning Discriminatory Copay Accumulator Adjustment Program
Patients, Advocates Share Stories, Ask Health Policy Committee to Back New Bill to Ensure All Copays Count
House Bill 4353 Supports Patient Access to Critical Treatments by
Banning Discriminatory Copay Accumulator Adjustment Programs
Patient Advocacy Groups Launch New Coalition, Back New Bill to Ensure All Copays Count
House Bill 4353 Supports Patient Access to Critical Treatments by
Banning Discriminatory Copay Accumulator Adjustment Programs
Implications of COVID for Oral Care: How will Dentistry Change?
Covid-19 has brought many changes to our daily lives. As life begins to “open up,” Karen Ridley shares what changes to expect as you visit the dentist.
Economic Support During COVID-19: An Update
Updates on resources and economic support for Michiganders during the COVID-19 pandemic.
Resources for Michiganders during the COVID-19 Crisis
State specific information on unemployment benefits and COVID-19 resources
Manufacturers Report No Issues with Supply
NHF shares an update on product availability during the COVID-19 outbreak.
HFM is Cancelling SpringFest 2020 in Light of the Coronavirus
In light of the growing concern of spread of COVID-19 within Michigan, HFM will be cancelling SpringFest on April 3-5, 2020 at the Amway Grand Hotel in Grand Rapids.
Health Can’t Wait
The coalition that is fighting to protect patients from harmful insurance tactics.
On-Demand, Prophy, Gene Therapy, Gene Editing: What’s the Difference?
There are many treatment options for patients with hemophilia, with even more being developed in scientific laboratories. Learn about the broad principles of the different treatment options currently (or potentially) available for hemophilia A and B through this story of a few houses.
Are You Utilizing Your Resources? Learn how your HTC PT can help you!
Learn the many ways physical therapists provide support for bleeding disorder patients.
HFM partners with Save One Life for Women and Girls Initiative
HFM and Save One Life are partnering to support the unmet needs of women and girls with bleeding disorders across the world.
Update on Recall of Bayer Kogenate FS from National Organizations
Patient organizations are in ongoing communication with manufacturer
National Joint Statement on Recall of Bayer Kogenate FS Lots
Last week, Bayer announced the recall of two lots of Kogenate® FS antihemophilic factor (recombinant) 2000 IU vials. That highly concerning announcement has raised many questions on the part of both national organizations and community members.
Medical Advisory: Bayer Announces Recall of Two Lots of Kogenate FS
July 19, 2019 Bayer has announced a recall of two lots of Kogenate® FS 2000 IU vials.
Educating, Equipping, and Empowering Women with Hemophilia
Shellye Horowitz reviews the birth of HFM’s National Conference for Women with Hemophilia and the movement to ensure women with hemophilia receive proper medical care.
Ending Period Poverty
Oscar winning documentary shines light on a cause close to the bleeding disorders community.
Worried About Your Child Getting Homesick?
Planning to send your child to camp this summer? Learn a few tips to help you child overcome feeling homesick from one of camp’s HTC social workers.
How Will the Midterm Election Results Affect Healthcare in Michigan?
As the 2019 legislative cycle begins, HFM will be monitoring the introduction of bills and assessing their possible impact on the bleeding disorders community
Michigan Passes Medicaid Work Requirements Bill
The bill also includes exemptions for disability caretakers, parents of children under six, pregnant women, people receiving disability benefits, and those who are medically frail, which includes patients diagnosed with hemophilia, VWD, and other factor deficiencies.
Children’s Special Health Care Services: Maintaining Access to Care for the Bleeding Disorders Community
CSHCS covers people under the age of 21 with a qualifying medical condition. However, the age limitation is waived for patients with certain blood clotting disorders (hemophilia and other bleeding disorders) and cystic fibrosis.
