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Featured News

Implications of COVID for Oral Care: How will Dentistry Change?

Covid-19 has brought many changes to our daily lives. As life begins to “open up,” Karen Ridley shares what changes to expect as you visit the dentist.

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Featured News

Economic Support During COVID-19: An Update

Updates on resources and economic support for Michiganders during the COVID-19 pandemic.

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Featured News

Resources for Michiganders during the COVID-19 Crisis

State specific information on unemployment benefits and COVID-19 resources

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Featured News

Manufacturers Report No Issues with Supply

NHF shares an update on product availability during the COVID-19 outbreak.

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Featured News

HFM is Cancelling SpringFest 2020 in Light of the Coronavirus

In light of the growing concern of spread of COVID-19 within Michigan, HFM will be cancelling SpringFest on April 3-5, 2020 at the Amway Grand Hotel in Grand Rapids.

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Advocacy

Health Can’t Wait

The coalition that is fighting to protect patients from harmful insurance tactics.

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Featured News

On-Demand, Prophy, Gene Therapy, Gene Editing: What’s the Difference?

There are many treatment options for patients with hemophilia, with even more being developed in scientific laboratories. Learn about the broad principles of the different treatment options currently (or potentially) available for hemophilia A and B through this story of a few houses.

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Featured News

Are You Utilizing Your Resources? Learn how your HTC PT can help you!

Learn the many ways physical therapists provide support for bleeding disorder patients.

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Featured News

HFM partners with Save One Life for Women and Girls Initiative

HFM and Save One Life are partnering to support the unmet needs of women and girls with bleeding disorders across the world.

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Medical Advisory

Update on Recall of Bayer Kogenate FS from National Organizations

Patient organizations are in ongoing communication with manufacturer

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Medical Advisory

National Joint Statement on Recall of Bayer Kogenate FS Lots

Last week, Bayer announced the recall of two lots of Kogenate® FS antihemophilic factor (recombinant) 2000 IU vials. That highly concerning announcement has raised many questions on the part of both national organizations and community members.

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Featured News

Medical Advisory: Bayer Announces Recall of Two Lots of Kogenate FS

July 19, 2019 Bayer has announced a recall of two lots of Kogenate® FS 2000 IU vials.

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Featured News

Educating, Equipping, and Empowering Women with Hemophilia

Shellye Horowitz reviews the birth of HFM’s National Conference for Women with Hemophilia and the movement to ensure women with hemophilia receive proper medical care.

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Featured News

Ending Period Poverty

Oscar winning documentary shines light on a cause close to the bleeding disorders community.

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Camp

Worried About Your Child Getting Homesick?

Planning to send your child to camp this summer? Learn a few tips to help you child overcome feeling homesick from one of camp’s HTC social workers.

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Advocacy

How Will the Midterm Election Results Affect Healthcare in Michigan?

As the 2019 legislative cycle begins, HFM will be monitoring the introduction of bills and assessing their possible impact on the bleeding disorders community

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Advocacy

Michigan Passes Medicaid Work Requirements Bill

The bill also includes exemptions for disability caretakers, parents of children under six, pregnant women, people receiving disability benefits, and those who are medically frail, which includes patients diagnosed with hemophilia, VWD, and other factor deficiencies.

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Advocacy

Children’s Special Health Care Services: Maintaining Access to Care for the Bleeding Disorders Community

CSHCS covers people under the age of 21 with a qualifying medical condition. However, the age limitation is waived for patients with certain blood clotting disorders (hemophilia and other bleeding disorders) and cystic fibrosis.

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Advocacy

Patient Advocacy Groups Work to Reduce the Impact of Out-of-Pocket Expenses

This legislation would require insurance plans to offer a copay only option, which would not require patients to reach a deductible before their insurance begins to pay a portion of the cost.

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Advocacy

What is an Accumulator Adjustment Program?

Beginning January 2018, a few health plans, specifically high deductible plans offered by self-insured employer groups, have changed the way they calculate copays for patients using these cards.

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Advocacy

It’s a Great Time to Review Your Insurance Plan for 2019

A few things to keep in mind! Do you depend on factor co-pay assistance? If so, you should know that some insurance plans have changed …

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Medical Advisory

CSL Behring Discontinues Production and Distribution of Monoclate-P®

If you are currently using Monoclate-P®, please contact your physician or hemophilia treatment center to learn about other options that are available to you for treatment.

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Medical Advisory

Genentech Issues Statement on Hemlibra

If you have questions or concerns, please reach out to Genentech and/or your physician.

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Medical Advisory

Alnylam Suspends Fitusiran Dosing due to Thrombotic Event

The Company has suspended dosing in all ongoing fitusiran studies pending further review of the safety event and development of a risk mitigation strategy.

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