CAREER OPPORTUNITIES

Advocacy and Policy Manager

Department: Programming
Supervisor: Associate Director
Supervises:
None
Exempt/Nonexempt: Exempt
Full Time/Part Time:
Full Time

Position Summary

The primary responsibilities for the Advocacy and Policy Manager include oversite and coordination of all HFM activities related to community advocacy and policy efforts including legislative and grassroots advocacy. The Advocacy and Policy Manager will possess an understanding of issues limiting access to care, and will have the ability to advocate on behalf of the foundation with various stakeholders to maintain or grow access to outstanding health services and coverage for individuals and families affected by bleeding disorders. 

Additionally, the Advocacy and Policy Manager assists on drafting grant proposals and reconciliation reports, supporting communication and marketing needs, participating in programming efforts, and attending fundraising events and other activities within the Hemophilia Foundation of Michigan.

Responsibilities:

  • Create, strengthen, and maintain relationships with stakeholders, including elected officials, regulatory agencies, payers, manufacturers, consumers, and other decision-makers. Communicate foundation’s priorities regarding the needs of the bleeding disorders community and identify partnerships locally and nationally.
  • Individually, and in collaboration with national organizations, identify, research, and monitor legislation, policy, procedures, services, and insurance practices as they apply to the bleeding disorders community. Determine policy priorities and draft position statements, issue overviews, and messaging on behalf of organization.
  • Work to educate decision makers and influence actions, policies, and decisions that support the interests of the bleeding disorders community.
  • Develop, maintain, and lead partnerships with coalitions and other partners in the rare disease space.
  • Plan and coordinate annual state legislative day, Lansing Days, including recruiting participants, developing and leading the training program, scheduling legislative meetings, creating talking points, managing day of logistics, creating evaluations, and proactively following up with legislative offices.
  • Attend other events at state capitol and in Washington DC to meet with legislators, participate in press conferences, and meet with stakeholders, bringing in HFM leadership as appropriate.
  • Oversee and coordinate the HFM Advocacy Committee, schedule and lead quarterly updates, and plan all aspects of the annual summit.
  • Recruit, develop, train, manage, and support volunteers to assist the advancement of state advocacy and policy initiatives.
  • Create and host regular advocacy activities, including 2-3 annual webinars, coffee hours, and other events both virtual and in-person to maintain a robust year-round program and advocate engagement.
  • Provide pertinent education, training, and updates to consumers and staff via email, social media, print media, and web, including monthly advocacy e-newsletters.
  • Research grant opportunities and draft grant proposals and reconciliation reports for advocacy activities.
  • Other responsibilities as assigned. The inaugural Advocacy and Policy Manager provided social media and communications support – other responsibilities may relate to manager’s areas of expertise.

Qualifications/Requirements:

  • Bachelor’s Degree required, preferably in political science, public policy, communications or related area.
  • Must live in Michigan. Occasional work at the HFM office, located in Ypsilanti, will be required.
  • Demonstrated experience in grassroots organizing, lobbying, and/or public policy.
  • Excellent oral, writing, editing, and communication skills.
  • Able to manage multiple responsibilities across departments.
  • Excellent interpersonal relationship skills.
  • Self-motivated & well organized
  • Driver’s license
  • Ability to work autonomously and collaboratively

Desired Qualifications:

  • In-depth knowledge of social media and experience developing targeted campaigns across platforms.
  • Proficiency in MS Word and other graphic software

Physical Requirements:

  • Ability to safely and successfully perform the essential job functions consistent with the ADA and other federal, state and local standards, including meeting qualitative and/or quantitative productivity standards.
  • Ability to maintain regular, punctual attendance consistent with the ADA and other federal, state and local standards.

How to Apply

Email your cover letter and resume to Sharon Ceci at sceci@hfmich.org. No phone calls, please. 

Social Worker | Regional Program Manager

Department: Programming/Regional Core Center
Supervisor: Executive Director/Regional Director 
Supervises:
Master’s Level Clinical Social Work Interns    
Exempt/Nonexempt: Exempt
Full Time/Part Time:
Full Time

Position Summary

HFM Social Worker/Regional Program Manager includes the facilitation of the financial assistance program and oversight of the Delta Dental insurance program, as well as providing resources for the Hemophilia Treatment Centers (HTC) and bleeding disorder community members. 

In addition, the Social Worker/Regional Program Manager works via the Regional Core Center (RCC) in support of the federal Great Lakes Hemophilia Treatment Centers across Michigan, Ohio, and Indiana.

This position provides support for foundation events and programs. Other duties may be assigned to meet organizational needs.

Social Worker Responsibilities:

  • Provide support for health education in conjunction with program services staff via various platforms (social media/website/programs/events).
  • Provide state and local resources in coordination with Michigan HTC social workers to support patients via HFM’s financial assistance and resource efforts.
  • Work with operations colleagues to provide oversight for the Delta Dental program.
  • Support Michigan hemophilia treatment center initiatives in partnership with treatment center staff.
  • Provide support for The Artery newsletter preparing content and securing HTC staff as authors.
  • Support program services events and programs as necessary.
  • Offer leadership and collaboration regarding HFM health diversity, equity, and inclusion initiatives.
  • Manage the annual HFM scholarship program.
  • Manage various Michigan support groups in partnership with the group facilitators.
  • Assist in supporting social work engagement with HFM camping programs.

Regional Program Manager Responsibilities:

  • Plan and execute state and regional HTC staff meetings in partnership with RCC staff and HTCs.
  • Coordinate regional social work accreditations as necessary for HTC social workers.
  • Facilitate quarterly Michigan HTC social worker drop in meetings or educational webinars.
  • Work in partnership with RCC staff and committee to plan and execute the annual Regional Meeting.
  • Provide continuing education opportunities for regional HTC staff as appropriate.
  • Engage regional HTC staff in HFM programs and events as participants and speakers.
  • Perform site visits to regional HTC social workers to enhance working relationships.
  • Facilitate regional newsletter.
  • Familiarity and support of MCHB/HRSA funding requirements and reporting.
  • Other duties as assigned.

Qualifications/Requirements:

  • Excellent written and oral communication skills.
  • Excellent interpersonal relationship skills to work with a diverse patient population and hemophilia treatment center staff.
  • Familiarity with social media in health promotion.
  • Creative and energetic in development of new activities.
  • Must be detail and results oriented; work well with deadlines.
  • Driver’s license required.

Education/Training/Experience:

  • Master’s degree in social work. Clinical social work license or working toward licensing.
  • Community experience preferably with chronic disease population
  • Proficient in Microsoft Office.
  • Experience with event planning.
  • Experience with developing and facilitating webinars.

Physical Requirements:

  • Ability to safely and successfully perform the essential job functions consistent with the ADA and other federal, state and local standards, including meeting qualitative and/or quantitative productivity standards.
  • Ability to maintain regular, punctual attendance consistent with the ADA and other federal, state and local standards.

How to Apply

Email your cover letter and resume to Sharon Ceci at sceci@hfmich.org. No phone calls, please. 

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