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What are Bleeding Disorders?
Bleeding disorders are...
A group of inherited conditions that result when the blood does not clot properly due to a missing or defective protein or cell in one’s blood. Individuals affected by bleeding disorders may experience easy bruising, prolonged nosebleeds, heavy menstrual bleeding, and prolonged and spontaneous bleeding into joints, muscles, and organs. Prolonged bleeding may also occur following surgery or injury.
- Bleeding disorders affect all races, genders, and ages.
- Hemophilia and von Willebrand disease (VWD) are the two most common types of bleeding disorders.
- Hemophilia affects roughly 20,000 individuals in the US.
- VWD affects 1% of the US population.
HOW CAN WE HELP?
HFM was founded in 1956 and is the only chapter in the state of Michigan serving the bleeding disorders community. Our mission is to enhance the quality of life for all affected by hemophilia, von Willebrand disease, other coagulation disorders, and related complications including HIV/AIDS and hepatitis.
EDUCATION
Providing education at events, workshops, and programs
COMMUNITY CONNECTION
Creating opportunities to find support in one another
ADVOCACY
Standing up for the needs of our community
SUPPORT
Helping when you need a hand
CAMP
Promoting independence and leadership in children 6-18+
BRIDGING THE GAP
Connections, information, and resources
-Three ways to get involved-
JOIN HFM's
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STAY UP TO DATE ON ALL THE LATEST HFM NEWS AND EVENTS
-Upcoming Events-
JUL 8, 2020Dinner Talk: Gene Therapy Research
We are excited to invite you to join our first Dinner Talk, Gene Therapy Research: Understanding the Science. Look into the science of gene therapy …
JUL 13, 2020Women’s Luncheon: Women and Bleeding Disorders
You asked, we listened, and Dr. Chitlur accepted. Meera Chitlur, MD, is joining our next Women’s Luncheon on July 13 to discuss women with bleeding …
JUL 15, 2020Dinner Talk: Move Beyond the Threshold
We invite you to join our second Dinner Talk, Move Beyond the Threshold. Stay tuned for more information. Speaker info to come. Let us treat …
JUL 22, 2020Dinner Talk: Rebuilding the Body with Diet
Join our next Dinner Talk, Rebuilding the Body with Diet on July 22. Understand the components of food to help balance not only a plate, but …
AUG 12, 2020Dinner Talk: Understanding Gene Therapy Research and It’s Potential Application to Hemophilia
Save the date for the Dinner Talk, Understanding Gene Therapy Research and It’s Potential Application to Hemophilia. This presentation is intended to walk you through …
AUG 19, 2020Dinner Talk: VWiD, a presentation with Erica
Save the date for the Dinner Talk, VWiD, a presentation with Erica! Takeda’s VWiD program features real patients living with Von Willebrand Disease, and our …
