What are Bleeding Disorders?
Bleeding disorders are...
A group of inherited conditions that result when the blood does not clot properly due to a missing or defective protein or cell in one’s blood. Individuals affected by bleeding disorders may experience easy bruising, prolonged nosebleeds, heavy menstrual bleeding, and prolonged and spontaneous bleeding into joints, muscles, and organs. Prolonged bleeding may also occur following surgery or injury.
- Bleeding disorders affect all races, genders, and ages.
- Hemophilia and von Willebrand disease (VWD) are the two most common types of bleeding disorders.
- Hemophilia affects roughly 20,000 individuals in the US.
- VWD affects 1% of the US population.
HOW CAN WE HELP?
HFM was founded in 1956 and is the only chapter in the state of Michigan serving the bleeding disorders community. Our mission is to enhance the quality of life for all affected by hemophilia, von Willebrand disease, other coagulation disorders, and related complications including HIV/AIDS and hepatitis.
EDUCATION
Providing education at events, workshops, and programs
COMMUNITY CONNECTION
Creating opportunities to find support in one another
ADVOCACY
Standing up for the needs of our community
SUPPORT
Helping when you need a hand
CAMP
Promoting independence and leadership in children 6-18+
BRIDGING THE GAP
Connections, information, and resources
-Three ways to get involved-
JOIN HFM's
EMAIL LIST
STAY UP TO DATE ON ALL THE LATEST HFM NEWS AND EVENTS
-Upcoming Events-
MAY 20, 2021Understanding Copay Accumulator Adjustment Programs 2.0
For the past few years, insurance companies have been increasingly introducing copay accumulator programs that negatively impact patients by banning copay assistance from counting towards …
MAY 25, 2021HFM Ruby Connection: Mandala Drawing
Join HFM’s NEW women’s group, the Ruby Connection. Alternating between noon-1pm and 7-8pm the fourth Tuesday of the month, adult women in the bleeding disorders …
JUN 1, 2021Men’s Support Group
Join HFM’s virtual Men’s Support Group on June 1 at 6:30p. All men 18+ with a bleeding disorder are welcome to join us every first …
JUN 12, 2021VWD Education Day and Symposium
Michigan’s FIRST von Willebrand Education Day and Symposium! Held virtually, Saturday, June 12, 9:30am-3pm. Patients, caregivers, and healthcare providers are invited for a day of …
June 18, 2021Mocktail Community Night
Let’s Shake It Up!Professional bartender, Tammy Coxen will teach us how to shake up some zero-proof cocktails. Summer is here, and this is your chance …
JUN 22, 2021HFM Ruby Connection: Bee Encounter with Bill and Kathy Darbison
Join HFM’s NEW women’s group, the Ruby Connection. Alternating between noon-1pm and 7-8pm the fourth Tuesday of the month, adult women in the bleeding disorders …
