What are Bleeding Disorders?
Bleeding disorders are...
A group of inherited conditions that result when the blood does not clot properly due to a missing or defective protein or cell in one’s blood. Individuals affected by bleeding disorders may experience easy bruising, prolonged nosebleeds, heavy menstrual bleeding, and prolonged and spontaneous bleeding into joints, muscles, and organs. Prolonged bleeding may also occur following surgery or injury.
- Bleeding disorders affect all races, genders, and ages.
- Hemophilia and von Willebrand disease (VWD) are the two most common types of bleeding disorders.
- Hemophilia affects roughly 20,000 individuals in the US.
- VWD affects 1% of the US population.
HOW CAN WE HELP?
HFM was founded in 1956 and is the only chapter in the state of Michigan serving the bleeding disorders community. Our mission is to enhance the quality of life for all affected by hemophilia, von Willebrand disease, other coagulation disorders, and related complications including HIV/AIDS and hepatitis.
EDUCATION
Providing education at events, workshops, and programs
COMMUNITY CONNECTION
Creating opportunities to find support in one another
ADVOCACY
Standing up for the needs of our community
SUPPORT
Helping when you need a hand
CAMP
Promoting independence and leadership in children 6-18+
BRIDGING THE GAP
Connections, information, and resources
-Three ways to get involved-
JOIN HFM's
EMAIL LIST
STAY UP TO DATE ON ALL THE LATEST HFM NEWS AND EVENTS
-Upcoming Events-
OCT 20, 2021Dinner Talk: Go ahead. Give HEMLIBRA a shot
Save the date for Go ahead. Give HEMLIBRA a shot, a Dinner Talk hosted by Genentech on Wednesday, October 20 at 6p. Sponsored by: Join …
OCT 26, 2021HFM Ruby Connection: Pelvic Physical Therapy
Join HFM’s women’s group, the Ruby Connection, at 7-8pm on the fourth Tuesday of each month. Adult women in the bleeding disorders community come together …
OCT 27, 2021Dinner Talk: Pain Matters + Take Control to a High Level – Rebinyn®—Reach for High Factor Levels in Hemophilia B
Save the date for Pain Matters + Take Control to a High Level – Rebinyn®—Reach for High Factor Levels in Hemophilia B, a Dinner Talk …
NOV 3, 2021Dinner Talk: From Clinic to Kitchen Table: Infusing Kids at Home
Save the date for From Clinic to Kitchen Table: Infusing Kids at Home a Dinner Talk hosted by Sanofi Genzyme on Wednesday, November 3 at …
NOV 10, 2021Dinner Talk: Reframe Your Mindset
Save the date for Reframe Your Mindset a Dinner Talk hosted by Genentech on Wednesday, November 10 at 6p. Sponsored by: An interactive workshop sponsored …
NOV 11-13, 2021Adult Patient and Family Upper Peninsula Virtual Retreat
Adult Patient and Family Upper Peninsula Virtual Retreat We are so glad to be able to offer this virtual experience this year. We would all …
