SERVING THE BLEEDING DISORDERS COMMUNITY
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What are Bleeding Disorders?
Bleeding disorders are...
A group of inherited conditions that result when the blood does not clot properly due to a missing or defective protein or cell in one’s blood. Individuals affected by bleeding disorders may experience easy bruising, prolonged nosebleeds, heavy menstrual bleeding, and prolonged and spontaneous bleeding into joints, muscles, and organs. Prolonged bleeding may also occur following surgery or injury.
- Bleeding disorders affect all races, genders, and ages.
- Hemophilia and von Willebrand disease (VWD) are the two most common types of bleeding disorders.
- Hemophilia affects roughly 20,000 individuals in the US.
- VWD affects 1% of the US population.
HOW CAN WE HELP?
HFM was founded in 1956 and is the only nonprofit serving the bleeding disorders community in Michigan. Our mission is to enhance the quality of life for all affected by hemophilia, von Willebrand disease, other coagulation disorders, and related complications including HIV/AIDS and hepatitis.
EDUCATION
Providing education at events, workshops, and programs
COMMUNITY CONNECTION
Creating opportunities to find support in one another
ADVOCACY
Standing up for the needs of our community
SUPPORT
Helping when you need a hand
CAMP
Promoting independence and leadership in children 6-18+
BRIDGING THE GAP
Connections, information, and resources
-Three ways to get involved-
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-Upcoming Events-
Teen Retreat
Join HFM for our annual winter teen retreat at Camp Copneconic. Spend time with friends and learn about understanding your own personal boundaries and how …
Community Night
Join us in Livonia for an evening of community, food, and fun. Please RSVP by emailing Carrie McCulloch at cmcculloch@hfmich.org.
SpringFest
HFM’s SpringFest is our largest annual consumer education conference and is open to all Michigan individuals and families in the bleeding disorders community. Please join us for this wonderful weekend filled with amazing speakers, the latest medical information and opportunities to connect and learn from people who bring their own unique wisdom and experiences of living with a bleeding disorder.
Lansing Days
Join HFM for our annual advocacy day in Michigan’s state capitol on Tuesday, May 21 through Wednesday, May 22, 2019. We need your voices! Michigan is welcoming 74 new representatives to the House and Senate, help us raise awareness of the bleeding disorders community.
Butterfly Benefit
Enjoy a beautiful evening at the Grand Rapids Art Museum to support HFM’s summer camping programs for children affected by bleeding disorders. The evening will include entrance to the museum, food, drinks, and a myriad of ways to support children from the west side of Michigan.
Swinging for Smiles Charity Golf Outing
Join us for our annual golf outing at the Polo Field to help children with bleeding disorders attend summer camp in Michigan! Enjoy 18 holes of golf, lunch on the green, and a buffet dinner.
