What are Bleeding Disorders?
Bleeding disorders are...
A group of inherited conditions that result when the blood does not clot properly due to a missing or defective protein or cell in one’s blood. Individuals affected by bleeding disorders may experience easy bruising, prolonged nosebleeds, heavy menstrual bleeding, and prolonged and spontaneous bleeding into joints, muscles, and organs. Prolonged bleeding may also occur following surgery or injury.
- Bleeding disorders affect all races, genders, and ages.
- Hemophilia and von Willebrand disease (VWD) are the two most common types of bleeding disorders.
- Hemophilia affects roughly 20,000 individuals in the US.
- VWD affects 1% of the US population.
HOW CAN WE HELP?
HFM was founded in 1956 and is the only chapter in the state of Michigan serving the bleeding disorders community. Our mission is to enhance the quality of life for all affected by hemophilia, von Willebrand disease, other coagulation disorders, and related complications including HIV/AIDS and hepatitis.
EDUCATION
Providing education at events, workshops, and programs
COMMUNITY CONNECTION
Creating opportunities to find support in one another
ADVOCACY
Standing up for the needs of our community
SUPPORT
Helping when you need a hand
CAMP
Promoting independence and leadership in children 6-18+
BRIDGING THE GAP
Connections, information, and resources
-Three ways to get involved-
JOIN HFM's
EMAIL LIST
STAY UP TO DATE ON ALL THE LATEST HFM NEWS AND EVENTS
-Upcoming Events-
APR 27, 2021HFM Ruby Connection: Mandala Drawing
Join HFM’s NEW women’s group, the Ruby Connection. Alternating between noon-1pm and 7-8pm the fourth Tuesday of the month, adult women in the bleeding disorders …
MAY 4, 2021Men’s Support Group
Join HFM’s virtual Men’s Support Group on May 4 at 6:30p. All men 18+ with a bleeding disorder are welcome to join us every first …
MAY 5, 2021Dinner Talk: Crear conexiones: buscar apoyo en un momento de distanciamiento social
Crear conexiones: buscar apoyo en un momento de distanciamiento social Sponsored by: La pandemia mundial ha generado desafíos imprevistos para nuestra salud y bienestar. Aprendan …
May 14, 2021Sign Language Community Night
Kids are invited to join us for a special Sign Language Community Night! May 14 at 6 pm. Let’s get together to learn a new …
May 15, 2021Michigan Women’s Retreat
The 2021 Women’s Retreat is moving to spring! Mark your calendar for May 15, 2021 from 12 – 5pm. We’ll be providing you with a …
MAY 20, 2021Understanding Copay Accumulator Adjustment Programs 2.0
For the past few years, insurance companies have been increasingly introducing copay accumulator programs that negatively impact patients by banning copay assistance from counting towards …
