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What are Bleeding Disorders?
Bleeding disorders are...
A group of inherited conditions that result when the blood does not clot properly due to a missing or defective protein or cell in one’s blood. Individuals affected by bleeding disorders may experience easy bruising, prolonged nosebleeds, heavy menstrual bleeding, and prolonged and spontaneous bleeding into joints, muscles, and organs. Prolonged bleeding may also occur following surgery or injury.
- Bleeding disorders affect all races, genders, and ages.
- Hemophilia and von Willebrand disease (VWD) are the two most common types of bleeding disorders.
- Hemophilia affects roughly 20,000 individuals in the US.
- VWD affects 1% of the US population.
HOW CAN WE HELP?
HFM was founded in 1956 and is the only chapter in the state of Michigan serving the bleeding disorders community. Our mission is to enhance the quality of life for all affected by hemophilia, von Willebrand disease, other coagulation disorders, and related complications including HIV/AIDS and hepatitis.
EDUCATION
Providing education at events, workshops, and programs
COMMUNITY CONNECTION
Creating opportunities to find support in one another
ADVOCACY
Standing up for the needs of our community
SUPPORT
Helping when you need a hand
CAMP
Promoting independence and leadership in children 6-18+
BRIDGING THE GAP
Connections, information, and resources
-Three ways to get involved-
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-Upcoming Events-
June 3, 2020Advocating for Your Care in the ER with VWD
Having to advocate for yourself or a loved one’s care with VWD can be difficult, especially in an urgent situation! This workshop will cover how …
JUN 5, 2020Family Trivia Night
It’s time for an HFM Trivia Night! All are welcome on Friday, June 5 at 6p–bring your family, bring your smarts!* Join us on Zoom …
JUN 18, 2020Successful Communication
Cultivating independence in our children is beneficial–even for children with bleeding disorders. Join this webinar to learn more about developing independence in children and the …
June 29, 2020Women’s BiWeekly Luncheon
Join HFM for our next biweekly Women’s Luncheon on Monday, June 29 at 12pm. All women 18+ are welcome to join. Bring your own lunch/refreshment …
AUG 15, 2020Days for Girls Work Day and Potluck
Join HFM and Days for Girls on August 15 as we make menstrual hygiene kits to support women and girls across the world. Your effort to …
AUG 23, 2020Unite for Bleeding Disorders Walk–Detroit
Save the date for HFM’s Unite for Bleeding Disorders Walk in Detroit. PS–it’s never too early to start fundraising! Questions? Contact Carrie McCulloch at cmcculloch@hfmich.org …
