Send Sarah Procario a short paragraph describing your experience.
Have the following policies impacted you personally?

No annual or lifetime limits on benefits
Coverage for individuals with preexisting conditions

Coverage for children up to 26 years old

Limits on out-of-pocket expenses
These stories will be shared with legislators to inform their decisions on the future of health care.

What do we do?

HFM has a long history of involvement in legislative policy issues and advocacy outreach. Lansing Day, our state advocacy day, has become a permanent fixture of our organization since its inception in 2005. Our legislative day allows constituents the opportunity to visit with legislators and educate them on the needs and special interests of the bleeding disorders community. Lansing Day is held every May, join us this year for Lansing Day 2017, May 23rd and 24th.

We are happy to share that HFM has created an advocacy committee to assist staff members enhance our advocacy program and develop a year-round structure of involvement. Our advocacy committee includes community members, NHF/HFA representatives, government relations specialists, and other external stakeholders and meets once a month. 

HFM attends national advocacy events, including the National Hemophilia Foundation's annual legislative day, Washington Days.

Our advocacy staff monitors and researches policy issues that may negatively impact members of the bleeding disorders community. 


What is going on?

What we are paying attention to…

On the state level, HFM is monitoring the following issues:

  • Preserve/Protect Michigan’s Children’s Special Health Care Services program.
  • Preserve/Protect the Medicaid carve-out for clotting factor.
  • Ensure an adequate Medicaid pharmacy reimbursement for bleeding disorder therapies.
  • Ensure that step therapy or “fail first” cost control practices do not negatively impact consumers’ access to care.
  • Ensure that the prior authorization process does not negatively impact consumers’ access to care.
  • Improve access to dental care for people with bleeding disorders.

What is Children's Special Health Care Services (CSHCS)? And why is it so important for the Michigan bleeding disorders community?

Children’s Special Health Care Services is a program within the Michigan Department of Health and Human Services, provided under Title V of the Federal Social Security Act. It is designed for children and some adults with specialty health care needs. 

CSHCS covers people until the age of 21 with a qualifying medical condition. However, the age limitation is waived for patients with certain blood clotting disorders (Hemophilia and other bleeding disorders) and cystic fibrosis.

CSHCS helps cover the costs associated with treatment for bleeding disorders. These services can include paying specialty medical bills, coordinating services from multiple providers, education about specialty providers, coordinating health insurance benefits, and covering copays/deductibles.

For more information regarding CSHCS please visit click here.


On the federal level, HFM works with the National Hemophilia Foundation and the Hemophilia Federation of America to stay aware of any changes that may impact our community. HFM is in constant communication with NHF and HFA policy staff members and represents Michigan at NHF's federal legislative advocacy day, Washington Days.

To review the National Hemophilia Foundation's advocacy work click here. 

To review the Hemophilia Federation of America's advocacy work click here. 

Health Coverage:

ACA, Medicaid Expansion

In the current political climate, changes to health care have been front and center for people with chronic conditions. While it is not clear of the exact changes that policy makers might make to the current healthcare system, it is imperative that the bleeding disorders community stay alert and informed. 

To read details on health care changes, including congressional actions regarding the Affordable Care Act and Medicaid/Medicare, throughout the transition visit HFA's Health Legislation Outlook.

To find out how Michigan is impacted by the ACA’s Medicaid Expansions, click here.

ACA rules and regulations that have a positive impact on the bleeding disorders community:

  • Coverage for individuals with pre-existing conditions
  • No annual or lifetime limits on benefits
  • Children can receive coverage under their parent's health plan until the age of 26
  • Caps on out-of-pocket expenses


What can you do?

  • Take HFM’s Access to Treatment Survey to help HFM stay updated on the access to care issues affecting our community.
  • NEW this year, HFM is working to coordinate Coffee with Your Legislator events in 2017. Stay tuned for more information!
  • Contact your representatives and let your voice be heard.
  • Attend HFM’s annual state legislative day, Lansing Day. 
  • Do you have a specific insurance issue? Contact HFA's Project CALLS below:



Questions or comments?

Contact Sarah Procario at or 734.961.3516






Join HFM

Sign up for your annual membership to the Hemophilia Foundation of Michigan!

Matching Gifts Program

Many companies match their employee gifts to nonprofit organizations. Please click here and enter your company’s name in the box to see if your company has a matching gift program. If so, by applying for matching funding through your company, you will be able to make your donation dollars go further and increase your impact and support of HFM’s programs and services. If you have questions, please contact Gwyn Hulswit at or 734-961-3506. Thank you.