HFM began in 1956 as Hemophilia of Michigan, an all-volunteer chapter of the National Hemophilia Foundation, to “promote the welfare of those afflicted with hemophilia or related hemorrhagic disorders.” Hemophilia summer camp began in 1969. An important step in the development of HFM was the initiation of United Way funding in 1969, leading to incorporation in 1970 and the hiring of a staff. HFM became the regional core center for the Michigan, Ohio and Indiana treatment centers in 1975, handling the federal funding for the University of Michigan, Michigan State University and Cincinnati Children's Hospital treatment centers.
During the early years, HFM existed as part of the University of Michigan Hemophilia Treatment Center. The Foundation separated from the Center in 1980. In 1986, the Centers for Disease Control and Prevention initiated AIDS Risk Reduction funding, leading to the hiring of psychosocial members of the HTC teams, and expanding federal funding into all Ohio and Michigan HTCs. Presently, there are nine HTCs in Michigan, nine in Ohio and one in Indiana that make up Region V–East. As the regional core center, HFM has fiduciary responsibility for all federal funding for the 19 centers, and provides administrative oversight of the comprehensive care and prevention programs that are funded by the U.S. Maternal and Child Health Bureau and the Centers for Disease Control and Prevention.
The National Hemophilia Foundation amended its bylaws in 1996 to change its formal relationship with its chapters. As a result, HFM was granted its own 501(c)(3) status (federal tax exemption) in 1997 after many years of being under NHF’s umbrella.
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