Program of Events


Friday, April 21, 2017


3pm Hotel Check-in Begins, Hotel Lobby

4-8pm SpringFest Sign-in, TBD

Registration for adults and children

Evening activity, Roy E. Wilbanks Ballroom
Exclusive Sponsor: Bioverativ  

(Food provided)

Educational Suites Available
Learn about consumer products in a casual atmosphere.

 

Saturday, April 22, 2017

 

8-9am Breakfast, Roy E. Wilbanks Ballroom

8am-5pm Vendor Tables Open

8am-9:30am SpringFest Registration Continues

9:15am Childcare (0-4) check-in, Conference Room H

HFM community member and volunteer, Jenna Wicks, will lead a wonderful staff to care for our youngest children in a spacious room on the second floor of the conference center between 9:15am-5pm. Jenna received her Bachelors in early childhood development and currently works as the Art Studio Director at the University of Michigan North Campus Children’s Center where she works with children ages 0-4. Children will enjoy a variety of activities appropriate for their ages and development and all meals and snacks will be provided. 

9:15-9:45am Kids (5-12yrs) check-in for waterpark/Animal Magic, Auditorium 2

Splish, splash, ooh, aah! Kids ages 5-12 will have a fun-filled day at a water park and a colorful animal show. We’ll go to Splash universe Indoor Water Park in Dundee, MI, and then return to Eagle Crest Conference Center for an exotic performance by Animal Magic.

For more information, visit: www.splashuniverse.com and www.iwantanimalmagic.com

9:15-       Childcare check-in auditorium 2

9:45am   Transport to Splash Universe by bus Lunch at Splash Universe

3:45pm  Return to Eagle Crest Conference Center by bus

4pm        Animal Magic Performance

5pm        Pick-up kids in auditorium 1

10:30am Teens (13-17) check-in for laser tag/Animal Magic, Conference Room F


10:30-11:45am Sessions #1

  • Sesion en Espanol

  • Put the FUN in Fundraising

  • Medical updates from industry

  • Focus Group–Your Voice

  • Roundtables 

  • Caring for the Carrier: The Medical & Psychosocial Effects of Being a Carrier

  • The Important Role of Dad

  • What You Didn’t Know About Children’s Special Health Care Services
     

12-12:45pm Lunch, Roy E Wilbanks Ballroom

12:45-1:30pm Keynote, Dr. Mike Callaghan, Roy E. Wilbanks Ballroom

1:45-3:00pm Sessions #2

  • Bleeding Disorder Advocates: Influencing Health Care Policy, presented by US and state representatives

  • Medical Marijuana and Bleeding Disorders

  • Unraveling the Mystery of VWD

  • Sesión en Español

  • Women with Hemophilia

  • Roundtables 

  • Focus Group–Your Voice

  • Medical updates from industry

     

3:00-3:15pm Break 

 

3:15-4:30pm Sessions #3

  • Spotlight on Unaffected Siblings

  • PEP: Parents Empowering Parents

  • Aquatic Fitness for Men (Bring swimsuit.)

  • Thinking About Participating in a Research Study?

  • The Art of Speaking Up

  • Roundtables 

  • Focus Group–Your Voice

 

4:45-5:30pm Affinity/Support Groups facilitated by HFM community members
(Note: child care pick-up at 5pm) 

  • Carriers: My Untold Journey

  • Men 50+

  • Grandparents

  • Glandsman/Platelet Disorders

  • VWD 

 

5:00pm  Pick up all youth 5 and up in Auditorium 1; 0-4 in Conference Room H

 

6:00pm Dinner, Roy E. Wilbanks Ballroom
HFM Camp Presentation, Torey Allen & Tim Wicks

 

7:00pm HFM Membership Meeting, Roy E. Wilbanks Ballroom

Evening Event
Exclusive Sponsor: Shire 

 

9-11pm Educational suites avialable
Learn about consumer products in a casual atmosphere.

 

Sunday, April 23, 2017

 

8-9am Light Breakfast, Roy E. Wilbanks Ballroom

  

9:15-10:30am Sessions #4

*Children are welcome to attend with parents.

• Science is Real

• Healthy Eating Made Simple

• Community Counts: An Update on the CDC Surveillance Project

• Additional Sessions TBA

  

10:45am-12pm Brunch & Closing Activities
Raffle drawing and prizes!

Drawings for contests (you must be present to win!)