MEET THE 2025 LEADERS IN ACTION COHORT
Kaite Scott, LLMSW (she/her)
Kaite Scott joins the HFM team after spending much of her professional life serving children and families in various capacities ranging from early childhood programming, social justice education, and Clinical Infant Mental Health therapy at Washtenaw County Community Mental Health. In these roles, Kaite strived to empower families, assisted in removing barriers, and facilitated meaning-making experiences for individuals. She hopes to bring this same energy and spirit into her role as Social Work and Program Services Manager at HFM. Kaite previously was a camp counselor at Camp Bold Eagle, where she was moved and inspired by the relationships that existed throughout the bleeding disorder community and the positive, magical experiences that were created and offered to the campers. Katie has a master’s degree in social work from Eastern Michigan University and a bachelor of applied arts in child development from Central Michigan University.
Amar Haidar
What is your favorite aspect of the National Women’s Conference? My favorite aspect of the Women’s Conference is the way we are able to connect. Whether through our shared experiences, the challenges that come with our bleeding disorders, or our similar talents; it’s amazing to see how we all come together and create this wonderful community.
Amar is a Graphic Designer, Artist, and person with an Ultra-Rare bleeding disorder. Amar has a strong interest in helping her bleeding disorder community; whether it’s through fundraising, helping design camp t-shirts, or just generally being a part of various community events, Amar enjoys every aspect of being a community member. When she’s not at events, you can find Amar making designs, playing video games with friends, and listening to her favorite podcast, Hidden Brain by Shankar Vedantam.
Pam Migliore
What is your favorite aspect of the National Women’s Conference? My favorite aspect of the Women’s Conference is the targeted, up-to-date information on our health conditions delivered in a validating community setting that empowers us to advocate for and care for ourselves.
Pam Migliore is a single mother based in the North Denver Metro area of Colorado and is active with her state’s NBDF chapter. She has mild Hemophilia A without inhibitors, as well as a few other rare genetic health conditions, and has 2 sons: one who is a Hemophiliac and the other who isn’t. Originally from Maine, Pam loves the ocean and all bodies of water, and she enjoys crafting, traveling and home improvement projects (indoors and out.)
Frances Marie Rivera Pacheco
What is your favorite aspect of the National Women’s Conference? My favorite aspect of the Women’s Conference is the feeling of community and the energy of being surrounded by individuals who understand what I go through on a daily basis 🙂
Frances is a bleeding disorder advocate who focuses her efforts on menstruating individuals and ultra-rares. She is also a fierce advocate for mental health and can be heard hosting “The Self-Growth Train”, a podcast combining personal stories, opinions, and research to better guide her listeners through their self-growth journeys. At this time, her goal is to continue working towards becoming a Global Advocate for the bleeding disorders community and beyond.
Lisa Swaney
What is your favorite aspect of the National Women’s Conference? What I love most about the conference is being with my Hemophilia family/community. Working together as a community to raise awareness for women who still struggle today to get a diagnoses. I love seeing my older friends and meeting new families.
Lisa Swaney lives in Oxford, IN with her son and husband, and is a social worker by trade. Both she and her son have Hemophilia A, and it took her several years to get a diagnosis.
Marcelle Williams
What is your favorite aspect of the National Women’s Conference? My favorite aspect of the Women’s Conference was hearing the powerful and diverse stories of women in the bleeding disorder community. It was inspiring to learn from their experiences while also contributing to conversations about how we can support and empower the next generation of women to thrive and advocate for themselves.
Marcelle Williams is a high school theology teacher, a passionate advocate for women in the bleeding disorder community, and a mother of two children with Hemophilia A and von Willebrand Disease. With a PhD in Theology and Religious Studies and firsthand experience as a mild hemophiliac, she brings a unique perspective to her advocacy and teaching. She is committed to fostering inclusivity, education, and empowerment in all her endeavors.