Applications for the 2019 National Women’s Conference are now closed.
The Hemophilia Foundation of Michigan (HFM) is pleased and excited to host the 2019 National Conference for Women with Hemophilia, Being Visible: Hear Our Voices. Being Visible is an educational conference for women and teen girls, with broad geographic representation from around the country.
Those who are eligible to join us will experience an amazing weekend learning from national expert health care providers, and have opportunities to connect with other attendees who each bring their own unique wisdom and experience of living with hemophilia. There is NO CHARGE for this weekend.
We invite women and teens 16 years and older to apply for the conference who meet the following qualifications:
- Have a diagnosis of hemophilia A or B, or are a carrier, or;
- Have a family history of hemophilia A or B and have bleeding symptoms such as heavy periods, easy bruising, or experiences with bleeding complications after dental work, surgery, or childbirth
Last year’s conference was the first of its kind in the United States and 103 women from 32 states attended; we expect a larger number of attendees from across the country to attend this year.
Contact Patrice Thomas at email@example.com for more information.
- Catherine “Andy” Anderson, Project Coordinator, Hemophilia Federation of America
- Meera Chitlur, MD, Pediatric Hematology, Detroit Children’s Hospital, Michigan
- Lisa Clothier, LMSW, ACSW, Hemophilia Foundation of Michigan, Ypsilanti, Michigan
- Stacy E. Croteau, MD, MMS, Associate Director, Boston Hemophilia Center, Boston, Massachusetts
- Chelsea Frimpong, MPH, Education Specialist, National Hemophilia Foundation
- Shelley Gerson, MEd, Patient Relationship and Advocacy Manager, Sanofi Genzyme, Michigan
- Kathleen Gerus-Darbison, MA, Professor of Sociology; Director, Stitches Women Initiative, Warren, Michigan
- Kerry Funkhouser, Ed.D, Executive Director for the Foundation for Women and Girls with Blood Disorders, Montclair, New Jersey
- Sherry Herman-Hilker, PT, MS, Physical Therapist, Hemophilia Treatment Center, University of Michigan, Ann Arbor, Michigan
- Shellye Horowitz, MA, High School Counselor and Teen Workshop Leader, California
- Jill Johnsen, MD, Hematology, Bloodworks Northwest, Seattle, Washington
- Roshni Kulkarni, MD, Michigan State University Center for Bleeding and Clotting Disorders, Lansing, Michigan
- Susan Fenters Lerch, Executive Director, Hemophilia Foundation of Michigan; Regional Director, Region V-E
- Shaveta Malik, MD, Obstetrics and Gynecology, Buffalo, New York
- Sally McAlister, BSN, retired Nurse Coordinator, Hemophilia Treatment Center, University of Michigan; Executive Director for HFM; Director of CDC Hemophilia Treatment Program, South Carolina
- Kate Nammacher, MPH, Senior Director of Education at the National Hemophilia Foundation, New York
- Danielle Nance, MD, Hematology, Arizona Bleeding Disorders Health and Wellness Center, Phoenix, Arizona
- Ann-Marie Nazzaro, Ph.D, Foundation for Women and Girls with Blood Disorders, Director Emeritus, New Jersey
- Mina Nguyen, PsyD, Psychologist, Oregon Hemophilia Treatment Center, Portland, Oregon
- Anjali Pawar, MD, Director of Pediatric Infusion Center, Division of Hematology Oncology, University of California – Davis
- Laurel Pennick, LCSW, Arizona Hemophilia and Thrombosis Center, Tucson, Arizona
- Skye Peltier, MPH, PA-C, Physician Assistant, Center for Bleeding and Clotting Disorders, University of Minnesota Medical Center, Minneapolis, Minnesota
- Annie Phillips, LMSW, Children’s Hospital of Michigan, Detroit, Michigan
- Sarah Procario, RYT 200, Certified Yoga Instructor, Tiny Buddha Yoga, Ann Arbor, Michigan; Advocacy and Communications Manager, HFM
- Elizabeth Quint, MD, Obstetrics and Gynecology, University of Michigan, Ann Arbor, Michigan
- Kim Roque, MPA, Manager of Education at the Foundation for Women and Girls with Bleeding Disorders
- Dave Rushlow, LMSW, Munson Medical Center, Traverse City, Michigan
- Robert Sidonio, MD, Comprehensive Bleeding Disorder Center at Emory University and Children’s Healthcare of Atlanta, Georgia
- Laura-Jean Siggins, MSN, RN-BC, CPN, CPST, Retired Clinical Nurse Coordinator, Hemophilia and Coagulation Disorders, University of Michigan, Ann Arbor, Michigan
- Patrice Thomas, MSW, MS, Program Services Director, Hemophilia Foundation of Michigan
- Christie VanHorne, MEd, MPH, CEO/Founder, CVH Consulting, New York
- Sarah Watson, LPC, CST, ATR, Certified Sex Therapist, Troy, Michigan
- Angela Weyand, MD, Hematology, University of Michigan, Ann Arbor
There will be interactive, educational sessions on topics such as reproductive health, coping with heavy periods, advances in diagnosis and treatment and topical psycho-social sessions. Stay tuned for more information.