We have received additional funding from a new sponsor and we will be able to increase the number of attendees. We will add women from our waiting list by application date; please feel free to fill out the application to be added to our waitlist.
We are overwhelmed by the response to HFM’s Women’s Conference. The Conference is currently full, however we are still taking applications for our waiting list.
The Hemophilia Foundation of Michigan (HFM) is pleased and excited to host the 2019 National Conference for Women with Hemophilia, Being Visible: Hear Our Voices. Being Visible is an educational conference for women and teen girls, with broad geographic representation from around the country.
Those who are eligible to join us will experience an amazing weekend learning from national expert health care providers, and have opportunities to connect with other attendees who each bring their own unique wisdom and experience of living with hemophilia. There is NO CHARGE for this weekend.
We invite women and teens 16 years and older to apply for the conference who meet the following qualifications:
- Have a diagnosis of hemophilia A or B, or are a carrier, or;
- Have a family history of hemophilia A or B and have bleeding symptoms such as heavy periods, easy bruising, or experiences with bleeding complications after dental work, surgery, or childbirth
Last year’s conference was the first of its kind in the United States and 103 women from 32 states attended; we expect a larger number of attendees from across the country to attend this year.
Contact Patrice Thomas at firstname.lastname@example.org for more information.
- Meera Chitlur, MD, Pediatric Hematology, Detroit Children’s Hospital
- Lisa Clothier, LMSW, ACSW, Hemophilia Foundation of Michigan, Ypsilanti, Michigan
- Stacy E. Croteau, MD, MMS, Associate Director, Boston Hemophilia Center, Boston
- Kathleen Gerus-Darbison, MA, Professor of Sociology; Director, Stitches Women Initiative, Warren, Michigan
- Jill Johnsen, MD, Hematology, Bloodworks Northwest, Seattle, Washington
- Roshni Kulkarni, MD, Michigan State University Center for Bleeding and Clotting Disorders, Lansing
- Shaveta Malik, MD, Obstetrics and Gynecology, Buffalo, New York
- Danielle Nance, MD, Hematology, Arizona Bleeding Disorders Health and Wellness Center, Phoenix
- Ann-Marie Nazzaro, Ph.D, Foundation for Women and Girls with Blood Disorders, Director Emeritus
- Mina Nguyen, Psy.D, Psychologist, Oregon Hemophilia Treatment Center, Portland, Oregon
- Laurel Pennick, LCSW, Arizona Hemophilia and Thrombosis Center, Tucson, Arizona
- Annie Phillips, LMSW, Children’s Hospital of Michigan, Detroit, Michigan
- Elizabeth Quint, MD, Obstetrics and Gynecology, University of Michigan, Ann Arbor
- Dave Rushlow, LMSW, Munson Medical Center, Traverse City, Michigan
- Robert Sidonio, MD, Comprehensive Bleeding Disorder Center at Emory University and Children’s Healthcare of Atlanta
- Sarah Watson, LPC, CST, ATR, Certified Sex Therapist, Troy, Michigan
- Angela Weyand, MD, Hematology, University of Michigan, Ann Arbor
There will be interactive, educational sessions on topics such as reproductive health, coping with heavy periods, advances in diagnosis and treatment and topical psycho-social sessions. Stay tuned for more information.