NOV 1 – 3, 2019
National Conference for Women with Hemophilia


7/31 UPDATE:

We are overwhelmed by the level of interest in HFM’s National Women’s Conference. Unfortunately, we have already reached our maximum attendance. However, please feel free to continue filling out the application to be added to our waitlist.


*Please be advised, if you have already applied, your attendance is not guaranteed. You will be notified by HFM on the status of your application within the next 4-6 weeks.

Applications due Friday, October 4, by 5pm EST 

The Hemophilia Foundation of Michigan (HFM) is pleased and excited to host the 2019 National Conference for Women with Hemophilia, Being Visible: Hear Our Voices. Being Visible is an educational conference for women and teen girls, with broad geographic representation from around the country.

Those who are eligible to join us will experience an amazing weekend learning from national expert health care providers, and have opportunities to connect with other attendees who each bring their own unique wisdom and experience of living with hemophilia. There is NO CHARGE for this weekend. 

We invite women and teens 16 years and older to apply for the conference who meet the following qualifications:

  • Have a diagnosis of hemophilia A or B, or are a carrier, or;
  • Have a family history of hemophilia A or B and have bleeding symptoms such as heavy periods, easy bruising, or experiences with bleeding complications after dental work, surgery, or childbirth

Last year’s conference was the first of its kind in the United States and 103 women from 32 states attended; we expect a larger number of attendees from across the country to attend this year.

Contact Patrice Thomas at for more information.

Current Speakers

  • Jeanette Cesta, Executive Director, VWD Connect Foundation, Wellington, Florida
  • Meera Chitlur, MD, Pediatric Hematology, Detroit Children’s Hospital
  • Lisa Clothier, LMSW, ACSW, Hemophilia Foundation of Michigan, Ypsilanti, Michigan
  • Stacy E. Croteau, MD, MMS, Associate Director, Boston Hemophilia Center, Boston
  • Kathleen Gerus-Darbison, MA, Professor of Sociology; Director, Stitches Women Initiative, Warren, Michigan
  • Jill Johnsen, MD, Hematology, Bloodworks Northwest, Seattle, Washington
  • Barbara Konkle, MD, Hematology, Bloodworks Northwest, Seattle
  • Roshni Kulkarni, MD, Michigan State University Center for Bleeding and Clotting Disorders, Lansing
  • Jennifer Maahs, RN-BC, MSN, PNP, Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana
  • Shaveta Malik, MD, Obstetrics and Gynecology, Buffalo, New York
  • Danielle Nance, MD, Hematology, Arizona Bleeding Disorders Health and Wellness Center, Phoenix
  • Ann-Marie Nazzaro, Ph.D, Foundation for Women and Girls with Blood Disorders, Director Emeritus
  • Mina Nguyen, Psy.D, Psychologist, Oregon Hemophilia Treatment Center, Portland, Oregon
  • Laurel Pennick, LCSW, Arizona Hemophilia and Thrombosis Center, Tucson, Arizona
  • Annie Phillips, LMSW, Children’s Hospital of Michigan, Detroit, Michigan
  • Elizabeth Quint, MD, Obstetrics and Gynecology,  University of Michigan, Ann Arbor
  • Dave Rushlow, LMSW, Munson Medical Center, Traverse City, Michigan 
  • Robert Sidonio, MD, Comprehensive Bleeding Disorder Center at Emory University and Children’s Healthcare of Atlanta
  • Sarah Watson, LPC, CST, ATR, Certified Sex Therapist, Troy, Michigan 
  • Angela Weyand, MD, Hematology, University of Michigan, Ann Arbor

Session Topics
There will be interactive, educational sessions on topics such as reproductive health, coping with heavy periods, advances in diagnosis and treatment and topical psycho-social sessions. Stay tuned for more information.

Applications are now open!

What some of our 2018 Women's Conference attendees had to say:




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November 1 – 3, 2019
The Westin Hotel, The Detroit Airport
2501 Worldgateway Pl
Detroit, MI 48242

Support HFM by attending this event!