The Hemophilia Foundation of Michigan’s National Conference for Women and Teens with Hemophilia, will take place virtually the weekend of October 9-10, 2020.
Due to COVID-19 health challenges, and based on recommendations from many physicians in the bleeding disorder community, we will not be able to hold an in-person event, but look forward to a fully virtual conference.
Attendees will enjoy an immersive, interactive experience through our online platform. They will learn from expert health care providers, and have opportunities to connect with other attendees through small group discussions.
Algunas sesiones serán interpretadas en español.
REGISTRATION is now closed
We invite women and teens 14 years and older to apply for the conference who meet the following qualifications:
· Have a diagnosis of hemophilia A or B, or are a carrier, or;
· Have a family history of hemophilia A or B and have bleeding symptoms such as heavy periods, easy bruising, or experiences with bleeding complications after dental work, surgery, or childbirth
CONFERENCE AT A GLIMPSE
- Panel: Creating Change – Policy, Practices, and Programs
This panel presentation will discuss the state of MASAC recommendations for women and girls; National Hemophilia Foundation’s national commitment to providing education and support to women and girls with bleeding disorders; overview of the national network of girls’ clinics, and a call to action for all women for 2021.
Panelists: Meera Chitlur, MD; Kerry Funkhouser, EdD; Ann-Marie Nazzaro, PhD; Len Valentino, MD
Small Group Discussions: Care in the Time of COVID-19
Attendees will break into smaller groups to talk about the challenges and changes they’ve faced in this past year.
Facilitated by mental health professionals
Diagnosis and Treatment of Women with Hemophilia over the Lifespan
Speaker: Robert Sidonio, MD
CDC Community Counts: Snapshot of Women’s Health
Speaker: Vanessa R Byams, DrPH, MPH
Research to Better Understand Factor Levels & Bleeding in Carriers
Speaker: Jill Johnsen, MD
Other small group topics include:
- Anemia and Iron Supplements, Jim Munn, RN
- High Risk Pregnancy, Meera Chitlur, MD
- Yoga is for Every Body, Sarah Procario, RYT 200
- Sexual Health and Women with Bleeding Disorders, Sarah Watson, MA, LPC, CST
- Women and Aging, Laura Gusba, NP
We look forward to building on the educational and leadership opportunities established at last year’s conference. One hundred and fifty women from 37 states and Washington DC joined us last year and we are excited to expand our efforts to build community and education. Thank you for being a part of this partnership to provide women with hemophilia with expert medical advice and psycho-social support.
- Angela Beebe, BHS, Fostering STARS Coordination and Life Skills Coach, Michigan State University, Lansing, MI
- Karen Boyd, LMSW, ACSW, DCSW, Olin Health Center, Michigan State University, Lansing, MI
- Vanessa Byams, DrPH, MPH, Team Lead, Bleeding Disorders Team, Epidemiology and Surveillance Branch, Division of Blood Disorders, Centers for Disease Control and Prevention, Atlanta, GA
- Meera Chitlur, MD, Pediatric Hematology, Detroit Children’s Hospital, MI
- Lisa Clothier, LMSW, ACSW, Outreach and Community Education Manager, Hemophilia Foundation of Michigan, Ypsilanti, MI
- Rachel Cooper-Leal, Sr. Manager, Patient Affairs, Pfizer
- Susan Fenters-Lerch, Executive Director, Hemophilia Foundation of Michigan, Regional Director, Great Lakes Region/Region V-E, Ypsilanti, MI
- Kerry Funkhouser, EdD, Executive Director, Foundation for Women and Girls with Blood Disorders, Montclair, NJ
- Shelley Gerson, MEd, Community Relations and Education Manager
- Laura Gusba, CNP, Henry Ford Health System, Hemophilia and Thrombosis Treatment Center, Detroit, MI
- Sherry Herman-Hilker, PT, MS, Physical Therapist, Hemophilia Treatment Center, University of Michigan, Ann Arbor, MI
- Gwyn Hulswit, MA, Associate Director, Hemophilia Foundation of Michigan, Ypsilanti, MI
- Jill Johnsen, MD, Hematology, Bloodworks Northwest, Seattle, WA
- Jen Maahs, MSN, PNP, RN-BC, Director of Bleeding Disorder Care and Coordination, Indiana Hemophilia and Thrombosis Center, Indianapolis, IN
- Mary Martinez, CMI-Spanish, Translator
- Jim Munn, MS, BS, BSN, RN-BC, Program Administrator, Hemophilia/Coag Program, University of Michigan Health System, Ann Arbor, MI
- Roshni Kulkarni, MD, Michigan State University Center for Bleeding and Clotting Disorders, Lansing, MI
- Ann-Marie Nazzaro, PhD, Foundation for Women and Girls with Blood Disorders, Director Emeritus, NJ
- Mina Nguyen, PsyD, Psychologist, Oregon Hemophilia Treatment Center, Portland, OR
- Annie Phillips, LMSW, Community therapist, MI
- Sarah Procario, Yoga Instructor, RYT 200, Ann Arbor, MI
- Dave Rushlow, LMSW, Program Manager, Bleeding Disorder Center, Munson Medical Center Traverse City, MI
- Cindy Sabo, MSN, RN, CNP, Hemostasis and Thrombosis Center, Children’s Hospital of Michigan – Detroit, Detroit, MI
- Ami Seligman, RN, Genentech Nurse Educator
- Robert Sidonio, MD, Comprehensive Bleeding Disorder Center at Emory University and Children’s Healthcare of Atlanta, Atlanta, GA
- Cathy Tiggs, MSSA, LISW, University Hospitals, Cleveland Medical Center, HTC, Cleveland, OH
- Patrice Thomas, MSW, MS, Program Services Director, Hemophilia Foundation of Michigan, Ypsilanti, MI
- Leonard Valentino, MD, Chief Executive Office, National Hemophilia Foundation, NY, NY
- Sarah Watson, LPC, CST, ATR, Certified Sex Therapist, Troy, Michigan