The Hemophilia Foundation of Michigan’s National Conference for Women and Teens with Hemophilia, will take place virtually the weekend of October 9-10, 2020.
Due to COVID-19 health challenges, and based on recommendations from many physicians in the bleeding disorder community, we will not be able to hold an in-person event, but look forward to a fully virtual conference.
Attendees will enjoy an immersive, interactive experience through our online platform. They will learn from expert health care providers, and have opportunities to connect with other attendees through small group discussions.
Algunas sesiones serán interpretadas en español.
We invite women and teens 14 years and older to apply for the conference who meet the following qualifications:
· Have a diagnosis of hemophilia A or B, or are a carrier, or;
· Have a family history of hemophilia A or B and have bleeding symptoms such as heavy periods, easy bruising, or experiences with bleeding complications after dental work, surgery, or childbirth
Topics that are being planned include:
- diagnosis and treatment of women and teen girls with bleeding disorders;
- reproductive health and pregnancy planning;
- advocacy and policy change to support women with bleeding disorders;
- stress management;
- managing a household with more than one member that has a chronic condition;
- communicating successfully with your provider;
- physical therapy for women
We look forward to building on the educational and leadership opportunities established at last year’s conference. One hundred and fifty women from 37 states and Washington DC joined us last year and we are excited to expand our efforts to build community and education. Thank you for being a part of this partnership to provide women with hemophilia with expert medical advice and psycho-social support.
- Meera Chitlur, MD, Pediatric Hematology, Detroit Children’s Hospital, Michigan
- Sherry Herman-Hilker, PT, MS, Physical Therapist, Hemophilia Treatment Center, University of Michigan, Ann Arbor, Michigan
- Jill Johnsen, MD, Hematology, Bloodworks Northwest, Seattle, Washington
- Roshni Kulkarni, MD, Michigan State University Center for Bleeding and Clotting Disorders, Lansing, Michigan
- Susan Fenters Lerch, Executive Director, Hemophilia Foundation of Michigan; Regional Director, Region V-E
- Kate Nammacher, MPH, Senior Director of Education at the National Hemophilia Foundation, New York
- Ann-Marie Nazzaro, Ph.D, Foundation for Women and Girls with Blood Disorders, Director Emeritus, New Jersey
- Mina Nguyen, PsyD, Psychologist, Oregon Hemophilia Treatment Center, Portland, Oregon
- Annie Phillips, LMSW, Community therapist, Michigan
- Elizabeth Quint, MD, Obstetrics and Gynecology, University of Michigan, Ann Arbor, Michigan
- Kim Roque, MPA, Manager of Education at the Foundation for Women and Girls with Bleeding Disorders
- Dave Rushlow, LMSW, Munson Medical Center, Traverse City, Michigan
- Robert Sidonio, MD, Comprehensive Bleeding Disorder Center at Emory University and Children’s Healthcare of Atlanta, Georgia
- Sarah Watson, LPC, CST, ATR, Certified Sex Therapist, Troy, Michigan
- Angela Weyand, MD, Hematology, University of Michigan, Ann Arbor