VWD Symposium: Tools for Thriving
Saturday, February 22, 2025
10:00am-4:00pm
Join us for a virtual day of learning and camaraderie.This event is open to all members of the Michigan von Willebrand community.
- Patients, caregivers, and healthcare providers are invited for a day of virtual health education, connection, and resource sharing focused solely on the von Willebrand community;
- There is no charge to attend this virtual event.
The deadline to receive an attendee package has passed.
Topics and Speakers:
- Testing, Diagnostics, and Research Trials – Mary McGrath, MD, Clinical Professor, Pediatric Hematology, C.S. Mott Children’s Hospital
- Von Willebrand Disease: A to Z, A Joint Effort: Teaming Up for Joint Protection, and Bleeds: How to Recognize and Respond – Maria Rohan, BSN, RN, Community Education Specialist – OH/MI USBU|Rare Disease – Hematology, Takeda
- Bleeding AND ‘Loose Connections’: Exploring the Relationship between VWD and EDS/HSD – Nicole Kendel, MD, Director, Hemostasis and Thrombosis Center; Pediatric Hematologist-Oncologist, Akron Children’s Hospital and Sherry Herman-Hilker, PT, MS, Physical Therapist, Hemophilia Treatment Center, University of Michigan
- Iron Deficient Anemia – Amanda Sankar, MD, Hematology, Nationwide Children’s Hospital
- Hematologic and Gynecologic treatment options for management of VWD – Meera Chitlur, MD, Director, Hemophilia Treatment Center, Children’s Hospital of Michigan; Alyssa Greenwell, DO, Pediatric Hematology/Oncology Fellow, Hemophilia Treatment Center, Children’s Hospital of Michigan; and Rebecca Jameson, MD, MPH, Chief of Obstetrics, Detroit Medical Center – Hutzel Women’s Hospital; Assistant Professor, Director, Ryan Residency Program, Department of Obstetrics and Gynecology, Wayne State University
- Treatment: Aging Affects: Longevity and Wellness with VWD – Jennifer Luijte, BSN, RN, Hemophilia Nursing Coordinator, Bronson Cancer Center
- Investigational Subcutaneous Treatment for VWD: Vega Program – Benjamin Kim, MD, MPhil; Vice President, Clinical Development; Star Therapeutics
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