Calendar

DEC 7, 2022

Dinner Talk: “What Does High Factor Activity Mean to You? – Pharmacokinetics and Factor Activity Level in Hemophilia B

Save the date for “What Does High Factor Activity Mean to You? – Pharmacokinetics and Factor Activity Level in Hemophilia B, a Dinner Talk hosted by Novo Nordisk on Wednesday, December 7 at 6p. Sponsored by: This program describes pharmacokinetic concepts and the importance of knowing the half-life of your factor product and how it …

DEC 7, 2022

Dinner Talk: “What Does High Factor Activity Mean to You? – Pharmacokinetics and Factor Activity Level in Hemophilia B
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NOV 30, 2022

Dinner Talk: Drug Discovery & Beyond: How Scientists and the FDA Research and Evaluate New Treatments for You

Save the date for Drug Discovery & Beyond: How Scientists and the FDA Research and Evaluate New Treatments for You a Dinner Talk hosted by BioMarin on Wednesday, August 17 at 6p. Sponsored by: Learn how new treatments are discovered and evaluated in this easy-to-understand presentation. Speaker: Jonathan Bernstein, MD, Associate Professor and Director, Hemostasis and Thrombosis …

NOV 30, 2022

Dinner Talk: Drug Discovery & Beyond: How Scientists and the FDA Research and Evaluate New Treatments for You
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NOV 16, 2022

Dinner Talk: Gene Therapy in Hemophilia B

Save the date for Gene Therapy in Hemophilia B, a Dinner Talk hosted by CSL Behring on Wednesday, November 16 at 6p. Sponsored by: This talk will review a brief overview of hemophilia and its history along with the evolution of treatment and treatment approaches.  Focusing on the unmet needs of people of people with …

NOV 16, 2022

Dinner Talk: Gene Therapy in Hemophilia B
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NOV 11, 2022

Community Night: Incredible Mo’s

Incredible Mo’s 6:30-9p We hope you will join us at Incredible Mo’s! Let’s have some pizza, bowl, and enjoy each other’s company.  Please note that we will be following HFM’s Covid Policies and Procedures. Please be sure to check the page nearer to the event for any updates.  REGISTER Thank you to our sponsors for supporting …

NOV 11, 2022

Community Night: Incredible Mo’s
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NOV 9, 2022

Dinner Talk: Health Insurance Roadmap

Save the date for Health Insurance Roadmap, a Dinner Talk hosted by Takeda on Wednesday, November 9 at 6p. Sponsored by: This program will provide you with information about health insurance, including: an overview of insurance options, transitions that impact coverage, and insurance denials of coverage. Speaker: Lisa Horstman, RN, BSN REGISTER HFM will treat attendees to dinner during this educational program.Please …

NOV 9, 2022

Dinner Talk: Health Insurance Roadmap
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OCT 26, 2022

Dinner Talk: Microbleeds: Fact or Fiction

Save the date for Microbleeds: Fact or Fiction a Dinner Talk hosted by Octapharma on Wednesday, October 26 at 6p. Sponsored by: This presentation will define microbleeds.  • Review several studies and information with evidence for and against joint microbleeds in hemophilia patients  • Discuss potential implications of evidence provided  • Discuss assessment of Ultrasound examinations …

OCT 26, 2022

Dinner Talk: Microbleeds: Fact or Fiction
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OCT 19, 2022

Dinner Talk: Turning the Stumbling Blocks into Stepping Stones

Save the date for Turning the Stumbling Blocks into Stepping Stones a Dinner Talk hosted by CSL Behring on Wednesday, October 19 at 6p. Sponsored by: Taking charge of your bleeding disorder: Taking charge of your life. Believing in yourself. Gettin’ in the game of life. Speaker: Perry Parker, Patient Advocate REGISTER HFM will treat attendees …

OCT 19, 2022

Dinner Talk: Turning the Stumbling Blocks into Stepping Stones
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OCT 11, 2022

Facts, Myths, and Fears of Gene Therapy

Facts, Myths, and Fears of Gene Therapy Please join us on Tuesday, October 11th at 6:00pm for a virtual one hour interactive presentation and discussion about gene therapy titled, Facts, Myths, and Fears of Gene Therapy. Our presenter, Dr. Jobe, will take a deep dive into the science behind gene therapy and will answer your questions in …

OCT 11, 2022

Facts, Myths, and Fears of Gene Therapy
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OCT 7-9, 2022

National Conference for Women and Teens with Hemophilia and Rare Factor Deficiencies

A primary COVID vaccination or vaccination series is required. We strongly recommend boosters, though they will not be required for participation with this conference. 2022 NATIONAL CONFERENCE FOR WOMEN AND TEENS WITH HEMOPHILIA AND RARE FACTOR DEFICIENCIES October 7-9, 2022The Westin Detroit Metropolitan Airport Registration is now closed. ELIGIBILITY Conference attendance is open to women …

OCT 7-9, 2022

National Conference for Women and Teens with Hemophilia and Rare Factor Deficiencies
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