Save the date for Gene Therapy in Hemophilia: From Curiosity to Eligibility & Beyond a Dinner Talk hosted by BioMarin on Wednesday, September 27 at 6:00p. Sponsored by: Gene therapy has arrived! Join us for a one-hour presentation to hear how gene therapy is designed to work and why eligibility testing is the first step on […]
Join HFM’s women’s group, the Ruby Connection, at 7-8pm on the fourth Tuesday of each month. Adult women in the bleeding disorders community come together for online social experiences that include an educational speaker or activity and connection with other women in the community. The group is open to women affected with a bleeding disorder
SEP 26, 2023HFM Ruby Connection: Book Discussion: Soul Broken by Stephanie Sarazin Read More »
Being an Effective Advocate: From Your Story to the District September 14, 2023 While advocacy days and outreach are vital, what are some other ways to be engaged with legislators and lawmakers? This session will cover outside of the box ideas to maintain relationships, be recognized as a constituent, and develop rapport with legislators and
SEP 14, 2023Being an Effective Advocate: From Your Story to the District Read More »
Save the date for Understanding the current needs and the areas of research in hemophilia a Dinner Talk hosted by Novo Nordisk on Wednesday, September 13 at 6:00p. Sponsored by: Learn about the needs and areas of research in hemophilia. Speaker: Julia Golden, MSN, APRN-CNP REGISTER Michigan families are eligible to receive a meal reimbursement. While
Join HFM’s virtual Men’s Support Group on Monday, September 11 at 6:00pm-7:30pm. During this men’s group discussion you are welcome to share your thoughts and ideas on your daily lives with other men who have a bleeding disorder. This group will be facilitated by two experienced hemophilia treatment center (HTC) social workers, David Rushlow, LMSW,
SEP 11, 2023Men’s Support Group Read More »
At Cincinnati Children’s Hemophilia Treatment Center, we value patient and family input on current healthcare experiences and future program initiatives. In recent years we have focused more on increasing patient and family involvement in various areas.
Patient Engagement: Working Together to Improve Experiences and Outcomes Read More »
Michigan Advocacy Update Sarah Procario, Advocacy Director, Hemophilia Foundation of Michigan 2023: A New Start Unfortunately, the Michigan Senate did not take action on Michigan’s copay accumulator legislation in 2022. While we are disappointed that HB 4353 did not pass last year, we are incredibly proud of our collective efforts and grateful to our previous
Advocacy Updates: Michigan and Ohio Read More »
Save the date for Ambassador Fireside Chat a Dinner Talk hosted by Genentech on Wednesday, August 30 at 6:00p. Sponsored by: Join us for a discussion about HEMLIBRA (emicizumab-kxwh) and its use in people with hemophilia A without factor VIII inhibitor. This program will be presented by Christine Pelayo, BSN, RN, Clinical Education Manager, who will discuss
AUG 30, 2023Dinner Talk: Ambassador Fireside Chat Read More »
Saturday, August 26 10:30am – 12:30pm Back to School time is meant for celebration! Let’s meet at Robinette’s to prepare for what is going to be a GREAT school year! This is our chance to have some fun and enjoy the sunshine one last time! Together, we will gather in the orchard at Robinette’s AppleHaus.
AUG 26, 2023Back to School Gathering Read More »
Revel & Roll West August 25, 2023 HFM Community Nights are coming to Kalamazoo, MI to celebrate the end of summer! Bring the entire family to Revel and Roll for an evening of bowling and arcade games. We’ll share a meal and provide an educational opportunity designed for all ages. There is no charge for
AUG 25, 2023Community Night: Revel & Roll West Read More »
To educate and empower kids with bleeding disorders to live a life of freedom and independence.
1921 W. Michigan Avenue
Ypsilanti, MI 48197
Phone (734) 544-0015
Fax (734) 544-0095
