Event – With Registration

JULY 10, 2024

Dinner Talk: Hema Biologics presents Treatment Option for the Hemophilia Community

Save the date for Treatment Option for the Hemophilia Community a Dinner Talk hosted by Hema Biologics on Wednesday, July 10 at 6 pm. Sponsored by: Please join us to learn about a treatment option for the hemophilia A or B with inhibitors community. Speaker: Doris Quon, MD, PhD; Medical Director, Orthopaedic Hemophilia Treatment Center […]

JULY 10, 2024

Dinner Talk: Hema Biologics presents Treatment Option for the Hemophilia Community
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JUNE 19, 2024

Dinner Talk: BioMarin presents Experience Gene Therapy for Hemophilia – from Eligibility to Infusion and Beyond

Save the date for BioMarin presents Experience Gene Therapy for Hemophilia – from Eligibility to Infusion and Beyond a Dinner Talk hosted by BioMarin on Wednesday, June 19 at 6 pm. Sponsored by: Join us for a one-hour presentation to hear one patient’s experience, learn how gene therapy is designed to work, and why eligibility

JUNE 19, 2024

Dinner Talk: BioMarin presents Experience Gene Therapy for Hemophilia – from Eligibility to Infusion and Beyond
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JUNE 5, 2024

Dinner Talk: Octapharma presents VWD-Von Willebrand Disease: What Type are you?

Save the date for VWD-Von Willebrands Disease: What Type Are You? hosted by Octapharma on Wednesday, June 5 at 6 pm. Sponsored by: This program provides an understanding of the importance of obtaining a correct VWD diagnosis within this complex bleeding disorder, and to understand how a diagnosis affects treatment needs. Speaker: Amber Federizo, DNP

JUNE 5, 2024

Dinner Talk: Octapharma presents VWD-Von Willebrand Disease: What Type are you?
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MAY 8, 2024

Dinner Talk: Sanofi presents The Power of Empowerment

Save the date for The Power of Empowerment hosted by Sanofi on Wednesday, May 8 at 6 pm. Sponsored by: Learn about ways to become more empowered, including acknowledging strengths, embracing individuality, establishing supporting partnerships, and more. Speaker: Angel Guess, RN, BSN, Community Relations & Education Manager (CoRe), Rare Blood Disorders, Sanofi REGISTER Michigan families are eligible

MAY 8, 2024

Dinner Talk: Sanofi presents The Power of Empowerment
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MAY 6, 2024

Camp Connections: Have Your Questions About Camp Answered Over Dinner!

Join us for a virtual dinner chat where we’ll talk about what makes Eagle Journeys special and what camping adventures are available to our bleeding disorder community! Let’s address any questions you might have about sending your child to Camp Bold Eagle!

MAY 6, 2024

Camp Connections: Have Your Questions About Camp Answered Over Dinner!
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