People living with hemophilia and other bleeding disorders rely on high cost medications in order to live healthy and productive lives. Patient protections included in the Affordable Care Act work to limit the impact these costs have on people living with bleeding disorders. The annual cap on out-of-pocket costs places a dollar limit on the amount insurers can charge a patient in any given year. The maximum out of pocket limit for a family for 2019 is $15,800, and $7,900 for an individual. However, this does not include monthly premiums. In total, this spending can place a serious financial burden on families.

HFM continues to work to ensure patients are able to afford their live-saving medications without experiencing a financial burden.

If you are in need of premium assistance, several organizations may be able to help.