Zach Ryan

NOV 13, 2024

Dinner Talk: Hemgenix: Steps to Treatment

Join HFM for Hemgenix: Steps to Treatment hosted by CSL Behring on Wednesday, November 13 at 6 pm. Sponsored by: Hear from someone firsthand about their experience with Gene Therapy. We will also walk through the steps of receiving Gene Therapy for Hemophilia B.  Speakers: Honey Blankenship, MSN, MBA, RN, Patient Resource Navigator at CSL Behring

NOV 13, 2024

Dinner Talk: Hemgenix: Steps to Treatment
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OCT 25-27, 2024

Bleeder & a Buddy

Bleeder and a Buddy is our annual retreat at Camp Copneconic where teens living with bleeding disorders can bring someone in their life who is not. This weekend will include games, team building activities, and opportunities to share information and experiences with our non-affected buddies. Our goal is to promote understanding of living with bleeding disorders amongst our friends, strengthen those friendships, and even forge some new friendships along the way!

Join us from October 25th to the 27th for Bleeder and a Buddy! Registration deadline is October 4th!

OCT 25-27, 2024

Bleeder & a Buddy
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