Zach Ryan

Save the date for Understanding the Immune System and Its Relationship to Investigational Gene Therapy hosted by Spark Therapeutics on Wednesday, July 24 at 6 pm. Sponsored by: Take a deeper dive into the understanding of investigational gene therapy. We will review how gene therapy is designed to work for hemophilia. Introduce the main characters of […]

Save the date for Treatment Option for the Hemophilia Community a Dinner Talk hosted by Hema Biologics on Wednesday, July 10 at 6 pm. Sponsored by: Please join us to learn about a treatment option for the hemophilia A or B with inhibitors community. Speakers: Doris Quon, MD, PhD; Medical Director, Orthopaedic Hemophilia Treatment Center

Join us for our new monthly event for men in the community, Blood Buddies. This event is an opportunity for men 18+ with bleeding disorders to come together, have some fun, and connect with others and share experiences living with bleeding disorders.

Save the date for BioMarin presents Experience Gene Therapy for Hemophilia – from Eligibility to Infusion and Beyond a Dinner Talk hosted by BioMarin on Wednesday, June 19 at 6 pm. Sponsored by: Join us for a one-hour presentation to hear one patient’s experience, learn how gene therapy is designed to work, and why eligibility

Developed by CSL Behring, the Gettin’ in the Game (GIG) Junior National Championship (JNC) was the first and currently only national sports competition designed specifically for the bleeding disorders community. The program gives children with bleeding disorders an opportunity to learn baseball, basketball, golf, or swimming and provides education and information-sharing opportunities for participants and their parents/caregivers.

Save the date for VWD-Von Willebrand Disease: What Type Are You? hosted by Octapharma on Wednesday, June 5 at 6 pm. Sponsored by: This program provides an understanding of the importance of obtaining a correct VWD diagnosis within this complex bleeding disorder, and to understand how a diagnosis affects treatment needs. Speaker: Amber Federizo, DNP

Join us for our new monthly event for men in the community, Blood Buddies. This event is an opportunity for men 18+ with bleeding disorders to come together, have some fun, and connect with others and share experiences living with bleeding disorders.

Join us for our new monthly event for men in the community, Blood Buddies. This event is an opportunity for men 18+ with bleeding disorders to come together, have some fun, and connect with others and share experiences living with bleeding disorders.

During this men’s group discussion you are welcome to share your thoughts and ideas on your daily lives with other men who have a bleeding disorder.

Save the date for The Power of Empowerment hosted by Sanofi on Wednesday, May 8 at 6 pm. Sponsored by: Learn about ways to become more empowered, including acknowledging strengths, embracing individuality, establishing supporting partnerships, and more. Speaker: Angel Guess, RN, BSN, Community Relations & Education Manager (CoRe), Rare Blood Disorders, Sanofi REGISTER Michigan families are eligible