Calendar

Save the date for Lesson Plans: Navigating School with a Bleeding Disorder a Dinner Talk hosted by Takeda on Wednesday, August 28 at 6 pm. Sponsored by: Learn how students, parents, family members, and school staff can work together to provide a positive learning environment for students with a bleeding disorder – from preschool through […]

Join us for our new monthly event for men in the community, Blood Buddies. This event is an opportunity for men 18+ with bleeding disorders to come together, have some fun, and connect with others and share experiences living with bleeding disorders.

Let’s ring in the school year together! Kids will have the opportunity to stock up on some school supplies and the whole family will have a chance to catch up with their fellow community members at a fun park!

Revel & Roll West Save the Date! August 23, 2024 This event is now FULL.You may add your name to the waitlist by clicking below. HFM Community Nights are coming to Kalamazoo, MI to celebrate the end of summer! Bring the entire family to Revel and Roll for an evening of bowling and arcade games.

Save the date for It’s A Feeling. If You Know You Know a Dinner Talk hosted by Genentech on Wednesday, August 14 at 6 pm. Sponsored by: Join us for a one-hour discussion about Hemlibra (emicizumab-kxwh) and its use in people with hemophilia A without factor VIII inhibitors. This program will be presented by the Genentech ACM who

Save the date for Understanding the Immune System and Its Relationship to Investigational Gene Therapy hosted by Spark Therapeutics on Wednesday, July 24 at 6 pm. Sponsored by: Take a deeper dive into the understanding of investigational gene therapy. We will review how gene therapy is designed to work for hemophilia. Introduce the main characters of

Save the date for Treatment Option for the Hemophilia Community a Dinner Talk hosted by Hema Biologics on Wednesday, July 10 at 6 pm. Sponsored by: Please join us to learn about a treatment option for the hemophilia A or B with inhibitors community. Speakers: Doris Quon, MD, PhD; Medical Director, Orthopaedic Hemophilia Treatment Center

Join us for our new monthly event for men in the community, Blood Buddies. This event is an opportunity for men 18+ with bleeding disorders to come together, have some fun, and connect with others and share experiences living with bleeding disorders.

Save the date for BioMarin presents Experience Gene Therapy for Hemophilia – from Eligibility to Infusion and Beyond a Dinner Talk hosted by BioMarin on Wednesday, June 19 at 6 pm. Sponsored by: Join us for a one-hour presentation to hear one patient’s experience, learn how gene therapy is designed to work, and why eligibility

Developed by CSL Behring, the Gettin’ in the Game (GIG) Junior National Championship (JNC) was the first and currently only national sports competition designed specifically for the bleeding disorders community. The program gives children with bleeding disorders an opportunity to learn baseball, basketball, golf, or swimming and provides education and information-sharing opportunities for participants and their parents/caregivers.