HTC News
Updates from HTCs in region V-E
Save the date for Gene Therapy in Hemophilia: From Curiosity to Eligibility & Beyond a Dinner Talk hosted by BioMarin on Wednesday, September 27 at 6:00p. Sponsored by: Gene therapy has arrived! Join us for a one-hour presentation to hear how gene therapy is designed to work and why eligibility testing is the first step on
Join HFM’s women’s group, the Ruby Connection, at 7-8pm on the fourth Tuesday of each month. Adult women in the bleeding disorders community come together for online social experiences that include an educational speaker or activity and connection with other women in the community. The group is open to women affected with a bleeding disorder
SEP 26, 2023HFM Ruby Connection: Book Discussion: Soul Broken by Stephanie Sarazin Read More »
Being an Effective Advocate: From Your Story to the District September 14, 2023 While advocacy days and outreach are vital, what are some other ways to be engaged with legislators and lawmakers? This session will cover outside of the box ideas to maintain relationships, be recognized as a constituent, and develop rapport with legislators and
SEP 14, 2023Being an Effective Advocate: From Your Story to the District Read More »
Save the date for Understanding the current needs and the areas of research in hemophilia a Dinner Talk hosted by Novo Nordisk on Wednesday, September 13 at 6:00p. Sponsored by: Learn about the needs and areas of research in hemophilia. Speaker: Julia Golden, MSN, APRN-CNP REGISTER Michigan families are eligible to receive a meal reimbursement. While
Join HFM’s virtual Men’s Support Group on Monday, September 11 at 6:00pm-7:30pm. During this men’s group discussion you are welcome to share your thoughts and ideas on your daily lives with other men who have a bleeding disorder. This group will be facilitated by two experienced hemophilia treatment center (HTC) social workers, David Rushlow, LMSW,
SEP 11, 2023Men’s Support Group Read More »