Calendar

OCT 27 2023

Community Night: Pumpkin Decorating

Pumpkin Decorating October 27, 2023 We hope families from across the state of Michigan join us virtually for a classic fall activity, pumpkin decorating! In a twist on traditional pumpkin carving, attendees will receive a decorative pumpkin to bedazzle, paint, and adorn with festive decorations alongside other community members. Costumes are welcomed and encouraged! We’ll […]

OCT 27 2023

Community Night: Pumpkin Decorating
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OCT 25, 2023

Dinner Talk: Healthy Nutrition with a Bleeding Disorder

Save the date for Healthy Nutrition with A Bleeding Disorder a Dinner Talk hosted by Octapharma on Wednesday, October 25 at 6:00p. Sponsored by: Definition of healthy eating and the importance for individuals with a bleeding disorder. It discusses nutrients involved in red blood cell production and those that increase the risk of bleeding. It

OCT 25, 2023

Dinner Talk: Healthy Nutrition with a Bleeding Disorder
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OCT 24, 2023

HFM Ruby Connection: T-Shirt Rug Making

Join HFM’s women’s group, the Ruby Connection, at 7-8pm on the fourth Tuesday of each month. Adult women in the bleeding disorders community come together for online social experiences that include an educational speaker or activity and connection with other women in the community. The group is open to women affected with a bleeding disorder

OCT 24, 2023

HFM Ruby Connection: T-Shirt Rug Making
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OCT 18, 2023

Dinner Talk: Turning stumbling blocks in to stepping stones

Save the date for Turning stumbling blocks in to stepping stones a Dinner Talk hosted by CSL Behring on Wednesday, October 18 at 6:00pm. Sponsored by: Taking charge of your bleeding disorder: Taking charge of your life. Believing in yourself: Gettin’ in the game of life. Speaker: Perry Parker, Patient Advocate REGISTER Michigan families are eligible to

OCT 18, 2023

Dinner Talk: Turning stumbling blocks in to stepping stones
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OCT 6-8, 2023

National Conference for Women and Teens with Hemophilia

NATIONAL CONFERENCE FOR WOMEN AND TEENS WITH HEMOPHILIA AND RARE FACTOR DEFICIENCIES October 6-8, 2023 Hosted in-person & online The Westin Detroit Metropolitan Airport ELIGIBILITY Conference attendance is open to women, teens, and others with the potential to menstruate who have hemophilia A, B, or rare factor deficiencies including 1, 2, 5, 7, 10, 11,

OCT 6-8, 2023

National Conference for Women and Teens with Hemophilia
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SEP 27, 2023

Dinner Talk: Gene Therapy in Hemophilia: From Curiosity to Eligibility & Beyond

Save the date for Gene Therapy in Hemophilia: From Curiosity to Eligibility & Beyond a Dinner Talk hosted by BioMarin on Wednesday, September 27 at 6:00p. Sponsored by: Gene therapy has arrived! Join us for a one-hour presentation to hear how gene therapy is designed to work and why eligibility testing is the first step on

SEP 27, 2023

Dinner Talk: Gene Therapy in Hemophilia: From Curiosity to Eligibility & Beyond
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SEP 26, 2023

HFM Ruby Connection: Book Discussion: Soul Broken by Stephanie Sarazin

Join HFM’s women’s group, the Ruby Connection, at 7-8pm on the fourth Tuesday of each month. Adult women in the bleeding disorders community come together for online social experiences that include an educational speaker or activity and connection with other women in the community. The group is open to women affected with a bleeding disorder

SEP 26, 2023

HFM Ruby Connection: Book Discussion: Soul Broken by Stephanie Sarazin
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SEP 14, 2023

Being an Effective Advocate: From Your Story to the District

Being an Effective Advocate: From Your Story to the District September 14, 2023 While advocacy days and outreach are vital, what are some other ways to be engaged with legislators and lawmakers? This session will cover outside of the box ideas to maintain relationships, be recognized as a constituent, and develop rapport with legislators and

SEP 14, 2023

Being an Effective Advocate: From Your Story to the District
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SEP 13, 2023

Dinner Talk: Understanding the current needs and the areas of research in hemophilia

Save the date for Understanding the current needs and the areas of research in hemophilia a Dinner Talk hosted by Novo Nordisk on Wednesday, September 13 at 6:00p. Sponsored by: Learn about the needs and areas of research in hemophilia. Speaker: Julia Golden, MSN, APRN-CNP REGISTER Michigan families are eligible to receive a meal reimbursement. While

SEP 13, 2023

Dinner Talk: Understanding the current needs and the areas of research in hemophilia
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